NHS Digital Data Release Register - reformatted

This is a readable version of NHS Digital's Data Release Registers since April 2016 - the "complete" list of where NHS Digital sends data on hospital patients after being paid a fee, and whether that release respected opt outs or not. For how to express that choice, medConfidential has more details.

This page is updated when NHS Digital publish more data. This page doesn't include anything from the cancer registry, whose release register is incomplete and false (e.g. when NDRS says 'You can find out more about these research projects here' many organisations simply aren't listed).

Organisations that breached the rules:

Organisations with projects that ignored opt outs:

  • Monitor
  • University Of Oxford
  • University College London (ucl)
  • Ims Health Ltd
  • Methods Analytics Ltd
  • Kpmg Llp
  • Optum Health Solutions Uk Limited
  • Ernst And Young Llp
  • University Of York
  • The University Of Manchester
  • Oliver Wyman
  • Harvey Walsh Ltd
  • Chks Limited
  • University Of Bristol
  • Care Quality Commission (cqc)
  • Southend-on-sea Borough Council (unitary)
  • Bracknell Forest Borough Council
  • Cambridgeshire County Council
  • Devon County Council
  • Imperial College London
  • Gateshead Council
  • Lincolnshire County Council
  • Wakefield Council
  • Birmingham City Council
  • Blackburn With Darwen Borough Council
  • Nottinghamshire County Council
  • University Of Leeds
  • University Of Liverpool
  • The Health Foundation
  • Lightfoot Solutions Uk Ltd
  • Cardiff University
  • Dorset County Council
  • University Of Birmingham
  • Bradford Metropolitan District Council
  • Torbay Council
  • Cheshire East Council
  • Calderdale Council
  • Device Access Uk Ltd
  • Hampshire County Council
  • Leeds City Council
  • Warwickshire County Council
  • Southampton City Council
  • North Lincolnshire Council
  • Suffolk County Council
  • National Audit Office
  • London Borough Of Richmond Upon Thames Council
  • West Sussex County Council
  • Surrey County Council
  • Salford Royal NHS Foundation Trust
  • Gloucestershire County Council
  • Wirral Metropolitan Borough Council
  • Kingston Hospital NHS Foundation Trust
  • Institute Of Occupational Medicine (iom)
  • Herefordshire Council
  • Dudley Metropolitan Borough Council
  • Nottingham City Council (unitary)
  • Thurrock Council
  • Northumberland County Council
  • London Borough Of Merton Council
  • Harrow Council
  • London Borough Of Enfield
  • Health Iq Ltd
  • Telford And Wrekin Council
  • Nhis
  • Staffordshire County Council
  • Genomics England
  • Medeanalytics International Limited
  • Derbyshire County Council
  • London Borough Of Barking And Dagenham
  • University Of Sheffield
  • Institute Of Cancer Research
  • Iqvia Solutions Uk Limited
  • Cheshire West And Chester Council
  • Norfolk County Council
  • Office For National Statistics (ons)
  • NHS National Services Scotland
  • Oxford University Hospitals NHS Trust
  • Royal Liverpool And Broadgreen University Hospitals NHS Trust
  • Coventry City Council
  • North Yorkshire County Council
  • Plymouth City Council
  • London Borough Of Newham Council
  • Oldham Metropolitan Borough Council
  • London Borough Of Newham Council
  • Wiltshire Council
  • Northumberland, Tyne And Wear NHS Foundation Trust
  • Crab Clinical Informatics
  • Buckinghamshire County Council
  • Somerset County Council
  • Blackpool Borough Council
  • Hertfordshire County Council
  • University Of Nottingham
  • North East Lincolnshire Council
  • Havering London Borough Council
  • Westminster City Council
  • I5 Health
  • Brighton & Hove City Council
  • Sefton Metropolitan Borough Council
  • University Of Surrey
  • Kent County Council
  • Newcastle City Council
  • Compufile Systems Limited
  • Hackney Council
  • Nottingham City Council
  • London Borough Of Wandsworth
  • Redcar & Cleveland Council (unitary)
  • University Of Warwick
  • University Of Cambridge
  • Islington Council
  • Uk Biobank
  • NHS England
  • Wiltshire Council
  • The Nuffield Trust
  • NHS England Direct Commissioning
  • British Society Of Gastroenterology
  • NHS England
  • London Borough Of Islington
  • Knowsley Metropolitan Borough Council
  • Private Healthcare Information Network (phin)
  • Queen Mary University Of London
  • University Of Essex
  • North Bristol NHS Trust
  • Mckinsey & Company
  • Plymouth City Council
  • Addenbrooke's Hospital
  • Northamptonshire County Council
  • Royal Brompton And Harefield NHS Trust
  • University Of Edinburgh
  • University Of Exeter
  • Royal Borough Of Kingston-upon-thames Council
  • West Hertfordshire Hospitals NHS Trust (whht)
  • Northamptonshire County Council
  • Derby Teaching Hospitals NHS Foundation Trust
  • Capita
  • The Medical School - Newcastle Upon Tyne
  • Leeds Teaching Hospitals NHS Trust
  • Public Health England (phe)
  • Solihull Metropolitan Borough Council
  • Pharmerit International
  • London School Of Economics And Political Science (lse)
  • London Borough Of Southwark
  • Halton Borough Council
  • Competition & Markets Authority
  • University Hospital Southampton NHS Foundation Trust
  • Imperial College London Business School
  • Guy's And St Thomas' NHS Foundation Trust
  • King's College Hospital NHS Foundation Trust
  • National Centre For Social Research
  • Cambridge University Hospitals NHS Foundation Trust
  • London Borough Of Sutton Council
  • Bristol City Council
  • Portsmouth City Council
  • St James University Hospital NHS Trust
  • Kent County Council
  • Cheshire East Borough Council
  • Western General Hospital
  • 3m United Kingdom Plc
  • Saving Faces
  • East Riding Of Yorkshire Council
  • University Of East Anglia
  • NHS England (quarry House)
  • Newcastle University
  • Sheffield City Council
  • Birmingham Women's And Children's NHS Foundation Trust
  • Bury Metropolitan Borough Council
  • Lancashire County Council
  • Southend On Sea Borough Council
  • South Gloucestershire Council
  • Cornwall Council
  • Isle Of Wight Council
  • University Hospitals Bristol NHS Foundation Trust
  • London Borough Of Greenwich
  • Warrington Borough Council (unitary)
  • Calderdale Metropolitan Borough Council
  • London Borough Of Bromley
  • The Clatterbridge Cancer Centre NHS Foundation Trust
  • Regional Drug & Therapeutic Centre
  • CSL-UK (CompuFile System Limited)
  • University Of Aberdeen
  • Plymouth University
  • University Hospitals Birmingham NHS Foundation Trust
  • Ucl Institute Of Education (ioe)
  • King's College London
  • Pathway Communications Ltd
  • University Hospital Of South Manchester NHS Foundation Trust
  • Local Authorities: Data Has Been Made Available To The Public Health Sections Of 91 Councils
  • Oxford University Hospitals NHS Foundation Trust
  • Vanguard - Moorfields Eye Hospital NHS Foundation Trust
  • Wilmington Healthcare
  • Nottingham University Hospitals NHS Trust
  • South Tyneside Metropolitan Borough Council
  • Derby City Council
  • The King's Fund
  • Salford City Council
  • Sheffield Teaching Hospitals NHS Foundation Trust
  • City Of Bradford Metropolitan District Council
  • University Of Leicester
  • Meditrends Ltd
  • St Helens Metropolitan Borough Council
  • Wolverhampton City Council
  • Civil Eyes Research Ltd
  • Dr. Foster Limited
  • Wilmington Healthcare
  • East Sussex County Council
  • Department Of Health (dh)
  • Non-specialist Acute Trusts In England
  • Luton Borough Council
  • Newcastle Upon Tyne City Council
  • Liverpool City Council
  • London Borough Of Havering
  • Medway Council
  • Trafford Metropolitan Borough Council
  • Leicester City Council
  • Bath And North East Somerset Council
  • Tameside Metropolitan Borough Council
  • Hmrc
  • Peterborough City Council
  • Breast Test Wales
  • Kirklees Metropolitan Council
  • Essex County Council
  • Barnsley Metropolitan Borough Council
  • Poole Hospital NHS Foundation Trust
  • London Borough Of Hounslow
  • London Borough Of Hillingdon
  • Leicestershire County Council
  • Northgate Public Services (uk) Limited
  • London Borough Of Bexley
  • Society Of Endocrinology
  • London Borough Of Redbridge Council
  • Wigan Metropolitan Borough Council
  • London Borough Of Ealing
  • Stockport Metropolitan Borough Council
  • Durham County Council
  • University Of London (uol)
  • The Institute For Fiscal Studies (ifs)
  • Rochdale Metropolitan Borough Council
  • Bradford Teaching Hospitals NHS Foundation Trust
  • University Hospitals Coventry And Warwickshire NHS Trust
  • University Of Dundee
  • Neil Wilson Associates Llp
  • London Borough Of Lewisham Council
  • FTI Consulting
  • Beacon Consulting
  • University Hospitals Of North Midlands NHS Trust
  • Trafford Council
  • Health And Safety Executive
  • National Institute For Health And Care Excellence (nice)
  • Rand Europe
  • Royal College Of Anaesthetists
  • Brighton And Hove City Council
  • NHS England (temporary National Repository)
  • London Borough Of Lambeth Council
  • York City Council
  • Picker Institute Europe
  • NHS Trust Development Authority (ntda)
  • London Borough Of Tower Hamlets Council
  • Sefton Council
  • Central Manchester University Hospitals NHS Foundation Trust
  • Royal National Orthopaedic Hospital NHS Trust
  • London Borough Of Southwark Council
  • Halton Borough Council (unitary)
  • Royal Free London NHS Foundation Trust
  • The Nuffield Department Of Surgical Sciences - Nds
  • Lambeth London Borough Council
  • City Of York Council
  • Telford And Wrekin Council (unitary)
  • London Borough Of Waltham Forest Council
  • Royal Derby Hospitals
  • Medical Research Council Clinical Trials Unit
  • London Borough Of Tower Hamlets
  • London School Of Hygiene And Tropical Medicine
  • University Of Newcastle Upon Tyne
  • Manchester University NHS Foundation Trust
  • University College London Hospitals NHS Foundation Trust
  • Wolfson Institute Of Preventive Medicine
  • Rod Gibson Associates Ltd
  • Dr. Foster
  • Hull And East Yorkshire Hospitals NHS Trust
  • The Dudley Group NHS Foundation Trust
  • Intensive Care National Audit & Research Centre (icnarc)
  • Birmingham Children's Hospital NHS Foundation Trust
  • Newcastle upon Tyne Hospitals NHS Foundation Trust
  • Kingston Hospital NHS Trust
  • University Of Southampton
  • NHS Improving Quality
  • Lancashire Care NHS Foundation Trust
  • The Royal College Of Surgeons Of England
  • St George's Hospital Medical School
  • Northern Lincolnshire and Goole Hospitals NHS Foundation Trust
  • The Royal Marsden NHS Foundation Trust
  • Royal Borough of Greenwich
  • Children's Commissioner's Office
  • University Hospital of North Staffordshire
  • Nice
  • Centre for Health Service Economics and Organisation
  • Experian Marketing Services
  • St Helens & Knowsley Teaching Hospitals NHS Trust
  • Cedar, Cardiff and Vale UHB
  • NHS Trust Development Authority
  • NHS Central Register Scotland
  • Birmingham Children’s Hospital
  • Health Education East Midlands
  • National Institute For Cardiovascular Outcomes Research
  • Organisations with projects that honoured opt outs:

  • Medicines And Healthcare Products Regulatory Agency (mhra)
  • University Of Oxford
  • University College London (ucl)
  • Imperial College London
  • University Hospitals Birmingham NHS Foundation Trust
  • Methods Analytics Ltd
  • Public Health England (phe)
  • University Of Birmingham
  • University Of York
  • University Of Cambridge
  • Ims Health Ltd
  • University Of Bristol
  • Royal College Of Physicians Of London
  • London School Of Hygiene And Tropical Medicine
  • Queen Mary University Of London
  • NHS Central Register Scotland
  • NHS Wales Informatics Service (nwis)
  • The University Of Manchester
  • Royal College Of Obstetricians And Gynaecologists (rcog)
  • The Royal College Of Surgeons Of England
  • South London And Maudsley NHS Foundation Trust
  • Institute Of Occupational Medicine (iom)
  • NHS Blood And Transplant (nhsbt)
  • University Of Aberdeen
  • Ministry Of Defence (mod)
  • University Of Leeds
  • National Institute For Cardiovascular Outcomes Research
  • Wolfson Institute Of Preventive Medicine
  • University Of Nottingham
  • Nuvia Ltd
  • Guy's And St Thomas' NHS Foundation Trust
  • West Hertfordshire Hospitals NHS Trust (whht)
  • University Of Sheffield
  • Ucl Institute Of Education (ioe)
  • Chelsea And Westminster Hospital NHS Foundation Trust
  • Royal College Of Anaesthetists
  • Northgate Public Services (uk) Limited
  • London North West Healthcare NHS Trust
  • The Medical School - Newcastle Upon Tyne
  • Gloucestershire Hospitals NHS Foundation Trust
  • Royal Free & University College Medical School
  • Institute Of Cancer Research
  • Cardiff University
  • Sheffield Teaching Hospitals NHS Foundation Trust
  • Addenbrooke's Hospital
  • Informatica Systems Ltd
  • University Hospital Southampton NHS Foundation Trust
  • National Cjd Surveillance Unit
  • Health & Safety Laboratory (hsl)
  • University College London Hospitals NHS Foundation Trust
  • Newcastle University
  • Institute Of Child Health
  • Cancer Research Uk
  • The Clatterbridge Cancer Centre NHS Foundation Trust
  • Salford Royal NHS Foundation Trust
  • Derbyshire Health NHS Foundation Trust
  • Gateshead Health NHS Foundation Trust
  • The Institute For Fiscal Studies (ifs)
  • Intensive Care National Audit & Research Centre (icnarc)
  • Organisation Name
  • Royal Devon And Exeter NHS Foundation Trust
  • Picker Institute Europe
  • Royal Free London NHS Foundation Trust
  • Iqvia Solutions Uk Limited
  • London North West University Healthcare NHS Trust
  • University Of Leicester
  • Barts Health NHS Trust
  • Kings College Medical School
  • Royal College Of Paediatrics & Child Health (rcpch)
  • Kings College Medical School
  • Cause Action Ltd
  • King's College London
  • Health And Safety Executive
  • University Of Southampton
  • University Of Warwick
  • Southampton General Hosptial
  • North Bristol NHS Trust
  • Tameside Metropolitan Borough Council
  • The Nuffield Trust
  • Havering London Borough Council
  • Hull And East Yorkshire Hospitals NHS Trust
  • Blackburn With Darwen Borough Council
  • Hackney Council
  • Derby Teaching Hospitals NHS Foundation Trust
  • Projects above are ordered by volumes of data they receive (longer projects or more data appear higher).

    CSU/CCGs

    These are grouped in the release register, but audited (and fail) independently

  • NHS South Tyneside Ccg
  • NHS South Tees Ccg
  • NHS Sunderland Ccg
  • NHS Crawley Ccg
  • NHS North East Hampshire And Farnham Ccg
  • NHS West Suffolk Ccg
  • NHS Vale Of York Ccg
  • NHS Surrey Heath Ccg
  • NHS Bradford City Ccg
  • NHS Bradford Districts Ccg
  • NHS Guildford And Waverley Ccg
  • NHS Eastbourne, Hailsham & Seaford Ccg
  • NHS Calderdale Ccg
  • NHS Airedale, Wharfedale And Craven Ccg
  • NHS Thurrock Ccg
  • NHS Liverpool Ccg
  • NHS Redbridge Ccg
  • NHS Horsham And Mid Sussex Ccg
  • NHS South Warwickshire Ccg
  • NHS Wakefield Ccg
  • NHS Leeds South And East Ccg
  • NHS Hartlepool And Stockton-on-tees Ccg
  • NHS Darlington Ccg
  • NHS West Kent Ccg
  • NHS Greater Huddersfield Ccg
  • NHS Rotherham Ccg
  • NHS Waltham Forest Ccg
  • NHS Scarborough And Ryedale Ccg
  • NHS Tower Hamlets Ccg
  • NHS Coventry And Rugby Ccg
  • NHS Ipswich And East Suffolk Ccg
  • NHS Wirral Ccg
  • NHS Haringey Ccg
  • NHS Islington Ccg
  • NHS Havering Ccg
  • NHS Corby Ccg
  • NHS Southend Ccg
  • NHS North Durham Ccg
  • NHS North Tyneside Ccg
  • NHS Newcastle Gateshead Ccg
  • NHS Northumberland Ccg
  • NHS Hardwick Ccg
  • NHS Brent Ccg
  • NHS West Norfolk Ccg
  • NHS Barnet Ccg
  • NHS North East Essex Ccg
  • NHS North Of England Commissioning Support Unit
  • NHS Canterbury And Coastal Ccg
  • NHS Enfield Ccg
  • NHS Mid Essex Ccg
  • NHS Barnsley Ccg
  • NHS Hambleton, Richmondshire And Whitby Ccg
  • NHS Hammersmith And Fulham Ccg
  • NHS Sutton Ccg
  • NHS Southwark Ccg
  • NHS Norwich Ccg
  • NHS Harrogate And Rural District Ccg
  • NHS Hull Ccg
  • NHS West London Ccg
  • NHS Slough Ccg
  • NHS Barking And Dagenham Ccg
  • NHS Oxfordshire Ccg
  • NHS East Riding Of Yorkshire Ccg
  • NHS Greenwich Ccg
  • NHS North Kirklees Ccg
  • NHS Richmond Ccg
  • NHS Nene Ccg
  • NHS Croydon Ccg
  • NHS Wigan Borough Ccg
  • NHS Knowsley Ccg
  • NHS Warrington Ccg
  • NHS Bolton Ccg
  • NHS Wandsworth Ccg
  • NHS West Cheshire Ccg
  • NHS Southport And Formby Ccg
  • NHS Oldham Ccg
  • NHS Tameside And Glossop Ccg
  • NHS Surrey Downs Ccg
  • NHS Heywood, Middleton And Rochdale Ccg
  • NHS Hillingdon Ccg
  • NHS South Cheshire Ccg
  • NHS Vale Royal Ccg
  • NHS Harrow Ccg
  • NHS South Sefton Ccg
  • NHS Stockport Ccg
  • NHS Bury Ccg
  • NHS Ealing Ccg
  • NHS Hounslow Ccg
  • NHS Trafford Ccg
  • NHS Halton Ccg
  • NHS Chiltern Ccg
  • NHS Kernow Ccg
  • NHS Eastern Cheshire Ccg
  • NHS Kingston Ccg
  • NHS St Helens Ccg
  • NHS Hastings And Rother Ccg
  • NHS North Lincolnshire Ccg
  • NHS West Essex Ccg
  • NHS Central London (westminster) Ccg
  • NHS Swindon Ccg
  • NHS Warwickshire North Ccg
  • NHS Bedfordshire Ccg
  • NHS High Weald Lewes Havens Ccg
  • NHS Swale Ccg
  • NHS Thanet Ccg
  • NHS East Surrey Ccg
  • NHS South Kent Coast Ccg
  • NHS Dartford, Gravesham And Swanley Ccg
  • NHS Ashford Ccg
  • NHS Brighton And Hove Ccg
  • NHS East And North Hertfordshire Ccg
  • NHS South Norfolk Ccg
  • NHS Southampton Ccg
  • NHS West Hampshire Ccg
  • NHS Basildon And Brentwood Ccg
  • NHS South Reading Ccg
  • NHS Gloucestershire Ccg
  • NHS Isle Of Wight Ccg
  • NHS Portsmouth Ccg
  • NHS Fareham And Gosport Ccg
  • NHS Herts Valley Ccg
  • NHS Merton Ccg
  • NHS North Norfolk Ccg
  • NHS Luton Ccg
  • NHS Sheffield Ccg
  • NHS Bath And North East Somerset Ccg
  • NHS Windsor Ascot And Maidenhead Ccg
  • NHS Leeds West Ccg
  • NHS Leeds North Ccg
  • NHS Bracknell And Ascot Ccg
  • NHS Wiltshire Ccg
  • NHS Medway Ccg
  • NHS Rushcliffe Ccg
  • NHS Camden Ccg
  • NHS Milton Keynes Ccg
  • NHS Castlepoint And Rochford Ccg
  • NHS Lewisham Ccg
  • NHS Newham Ccg
  • NHS South West Lincolnshire Ccg
  • NHS Lincolnshire West Ccg
  • NHS Lincolnshire East Ccg
  • NHS Cumbria Ccg
  • NHS Doncaster Ccg
  • NHS South Eastern Hampshire Ccg
  • NHS Mansfield And Ashfield Ccg
  • NHS Bromley Ccg
  • NHS North Hampshire Ccg
  • NHS South Devon And Torbay Ccg
  • NHS North And West Reading Ccg
  • NHS Bassetlaw Ccg
  • NHS Wokingham Ccg
  • NHS Coastal West Sussex Ccg
  • NHS North East Lincolnshire Ccg
  • NHS East Lancashire Ccg
  • NHS North West Surrey Ccg
  • NHS Central Manchester Ccg
  • NHS Nottingham City Ccg
  • NHS Newark And Sherwood Ccg
  • NHS Nottingham North And East Ccg
  • NHS Nottingham West Ccg
  • NHS North And East London Commissioning Support Unit
  • NHS Midlands And Lancashire Commissioning Support Unit
  • NHS Bexley Ccg
  • NHS Lambeth Ccg
  • NHS South Lincolnshire Ccg
  • NHS Central Midlands Commissioning Support Unit
  • NHS Bristol Ccg
  • NHS East Leicestershire And Rutland Ccg
  • NHS West Leicestershire Ccg
  • NHS Leicester City Ccg
  • NHS Northern Eastern Western Devon Ccg
  • NHS Newbury And District Ccg
  • NHS Aylesbury Ccg
  • NHS City & Hackney Ccg
  • NHS Cambridge And Peterborough Ccg
  • NHS Erewash Ccg
  • NHS South Worcestershire Ccg
  • NHS Solihull Ccg
  • NHS Walsall Ccg
  • NHS Stafford And Surrounds Ccg
  • NHS North Derbyshire Ccg
  • NHS Redditch And Bromsgrove Ccg
  • NHS Herefordshire Ccg
  • NHS East Staffordshire Ccg
  • NHS Somerset Ccg
  • NHS Sandwell And West Birmingham Ccg
  • NHS Dudley Ccg
  • NHS North Somerset Ccg
  • NHS South Gloucestershire Ccg
  • NHS Stoke On Trent Ccg
  • NHS Telford And Wrekin Ccg
  • NHS Salford Ccg
  • NHS Cannock Chase Ccg
  • NHS North Manchester Ccg
  • NHS South Manchester Ccg
  • NHS Shropshire Ccg
  • NHS West Lancashire Ccg
  • NHS Greater Preston Ccg
  • NHS Chorley And South Ribble Ccg
  • NHS Great Yarmouth And Waveney Ccg
  • NHS Birmingham South And Central Ccg
  • NHS Wyre Forest Ccg
  • NHS Wolverhampton Ccg
  • NHS Durham Dales, Easington & Sedgefield Ccg
  • NHS North Staffordshire Ccg
  • NHS Blackburn With Darwen Ccg
  • NHS Durham Dales, Easington And Sedgefield Ccg
  • NHS Southern Derbyshire Ccg
  • NHS Fylde And Wyre Ccg
  • NHS Blackpool Ccg
  • NHS Dorset Ccg
  • NHS Lancashire North Ccg
  • NHS South East Staffs And Seisdon Peninsular Ccg
  • NHS Birmingham Cross City Ccg
  • NHS Castle Point And Rochford Ccg
  • NHS Manchester Ccg
  • NHS Aylesbury Vale Ccg
  • NHS Birmingham Crosscity Ccg
  • NHS City And Hackney Ccg
  • NHS North Cumbria Ccg
  • NHS South, Central And West Commissioning Support Unit
  • Csus, Ccgs
  • NHS Cambridgeshire And Peterborough Ccg
  • NHS South East Staffordshire And Seisdon Peninsula Ccg
  • NHS Windsor, Ascot And Maidenhead Ccg
  • NHS Bracknell And Ascot Ccg
  • NHS Newbury And District Ccg
  • NHS Fylde & Wyre Ccg
  • NHS Morecambe Bay Ccg
  • NHS Northern, Eastern And Western Devon Ccg
  • NHS South Commissioning Support Unit
  • Central Southern Commissioning Support Unit