NHS Digital Data Release Register - reformatted

This is a readable version of NHS Digital's Data Release Registers since April 2016 - the "complete" list of where NHS Digital sends data on hospital patients after being paid a fee, and whether that release respected opt outs or not. For how to express that choice, medConfidential has more details.

This page is updated when NHS Digital publish more data. This page doesn't include anything from the cancer registry, whose release register is incomplete and false (e.g. when NDRS says 'You can find out more about these research projects here' many organisations simply aren't listed).

Organisations that breached the rules:

• University College London (ucl) [SMLS reported a DPA serious incident; breached contract — audit report]
• Methods Analytics Ltd [breached contract — audit report]
• University Of Bristol [breached contract — audit report]
• Harvey Walsh Ltd [unreported DPA breaches; breached contract — audit report]
• University Of Nottingham [breached contract — audit report]
• London Borough Of Enfield [unreported DPA serious incident — audit report]
• Health Iq Ltd [breached contract — audit report]
• Leeds Teaching Hospitals NHS Trust [breached contract — audit report]
• University College London Hospitals NHS Foundation Trust [SMLS reported a DPA serious incident; breached contract — audit report]
• Pathway Communications Ltd [breached contract — audit report]
• Vanguard - Moorfields Eye Hospital NHS Foundation Trust [breached contract — audit report]

Projects above are ordered by volumes of data they receive (longer projects or more data appear higher).

CSU/CCGs

These are grouped in the release register, but audited (and fail) independently