NHS Digital Data Release Register - reformatted

This is a readable version of NHS Digital's Data Release Registers since April 2016 - the "complete" list of where NHS Digital sends data on hospital patients after being paid a fee, and whether that release respected opt outs or not. For how to express that choice, medConfidential has more details.

This page is updated when NHS Digital publish more data. This page doesn't currently include anything from the cancer registry, whose release register is incomplete and wrong (e.g. when NDRS says 'You can find out more about these research projects here' many organisations simply aren't listed). PHE started respecting the National Data Opt Out in September 2018, and releases made after this date will be included (register publication lags release by at least 3 months).

Organisations that breached the rules:

Organisations with projects that ignored opt outs:

  • Monitor
  • Methods Analytics Ltd
  • National Audit Office
  • Harvey Walsh Ltd
  • The Health Foundation
  • Wilmington Healthcare
  • Kpmg Llp
  • Ernst And Young Llp
  • Optum Health Solutions Uk Limited
  • CHKS Limited
  • London Borough of Newham Council
  • Oliver Wyman
  • Device Access UK Ltd
  • Lightfoot Solutions UK Ltd
  • Health IQ Ltd
  • Southend-on-sea Borough Council (unitary)
  • i5 Health
  • Gateshead Council
  • NHS National Services Scotland
  • Kingston Hospital NHS Foundation Trust
  • MedeAnalytics International Limited
  • NHS Central Register Scotland
  • London Borough of Enfield
  • Bradford Metropolitan District Council
  • Calderdale Council
  • Northumberland, Tyne and Wear NHS Foundation Trust
  • Compufile Systems Limited
  • Royal Liverpool And Broadgreen University Hospitals NHS Trust
  • Office for National Statistics (ONS)
  • Nottingham City Council (unitary)
  • Harrow Council
  • Telford And Wrekin Council
  • Nhis
  • CRAB Clinical Informatics
  • NHS England (quarry House)
  • Addenbrooke's Hospital
  • Oxford University Hospitals NHS Trust
  • London Borough Of Newham Council
  • Regional Drug & Therapeutic Centre
  • Royal Brompton and Harefield NHS Trust
  • Derby City Council
  • Westminster City Council
  • Brighton & Hove City Council
  • Sefton Metropolitan Borough Council
  • Private Healthcare Information Network (PHIN)
  • University Of Surrey
  • London Borough of Tower Hamlets Council
  • The Newcastle upon Tyne Hospitals NHS Foundation Trust
  • Kent County Council
  • The Brain Tumour Charity
  • University Of Hull
  • Newcastle City Council
  • Telford and Wrekin Council (Unitary)
  • London Borough Of Wandsworth
  • Durham County Council
  • Redcar & Cleveland Council (unitary)
  • Islington Council
  • Wiltshire Council
  • NHS England
  • NHS England Direct Commissioning
  • Oliver Wyman Ltd
  • British Society Of Gastroenterology
  • Meditrends Ltd
  • NHS England
  • Birmingham Women's and Children's NHS Foundation Trust
  • University Of Essex
  • Mckinsey & Company
  • Plymouth City Council
  • RAND Europe
  • Nottingham University Hospitals NHS Trust
  • Capita
  • The Nuffield Trust For Research And Policy Studies In Health Services
  • Northamptonshire County Council
  • University Of Exeter
  • University Of Edinburgh
  • London Borough of Hackney
  • Gateshead Metropolitan Borough Council
  • National Institute for Health and Care Excellence (NICE)
  • The Clatterbridge Cancer Centre NHS Foundation Trust
  • Redcar and Cleveland Borough Council
  • Leeds Teaching Hospitals NHS Trust
  • Western General Hospital
  • Pharmerit International
  • Imperial College London Business School
  • Competition & Markets Authority
  • London School Of Economics And Political Science (lse)
  • Halton Borough Council
  • London Borough Of Southwark
  • St James University Hospital NHS Trust
  • Oxfordshire County Council
  • Health Innovation Network - South London
  • Department of Health and Social Care
  • University Hospitals of Derby and Burton NHS Foundation Trust
  • 3m United Kingdom Plc
  • The Institute For Fiscal Studies (ifs)
  • Cheshire East Borough Council
  • University Hospitals Coventry And Warwickshire NHS Trust
  • Saving Faces
  • Non-specialist Acute Trusts In England
  • University Hospitals Bristol NHS Foundation Trust
  • Department For Transport
  • Dr. Foster Limited
  • Poole Hospital NHS Foundation Trust
  • CSL-UK (CompuFile System Limited)
  • Manchester University NHS Foundation Trust
  • Plymouth University
  • Civil Eyes Research Ltd
  • Royal Free London NHS Foundation Trust
  • Vanguard - Moorfields Eye Hospital NHS Foundation Trust
  • Local Authorities: Data Has Been Made Available To The Public Health Sections Of 91 Councils
  • Pathway Communications Ltd
  • Oxford University Hospitals NHS Foundation Trust
  • University Hospital Of South Manchester NHS Foundation Trust
  • London Borough Of Hillingdon
  • Bradford Teaching Hospitals NHS Foundation Trust
  • The King's Fund
  • Wilmington Healthcare
  • Department Of Health (dh)
  • University Of London (uol)
  • Breast Test Wales
  • Rod Gibson Associates Ltd
  • Beacon Consulting
  • Trafford Council
  • Neil Wilson Associates Llp
  • University Hospitals Of North Midlands NHS Trust
  • Competition and Markets Authority
  • FTI Consulting
  • NHS England (temporary National Repository)
  • NHS Trust Development Authority (ntda)
  • Royal National Orthopaedic Hospital NHS Trust
  • The Dudley Group NHS Foundation Trust
  • London Borough of Harrow
  • Central Manchester University Hospitals NHS Foundation Trust
  • Royal Derby Hospitals
  • Hull And East Yorkshire Hospitals NHS Trust
  • Lambeth London Borough Council
  • London Borough Of Tower Hamlets
  • St George's Hospital Medical School
  • City Of York Council
  • The Nuffield Department Of Surgical Sciences - Nds
  • University Of Newcastle Upon Tyne
  • Dr. Foster
  • Birmingham Children's Hospital NHS Foundation Trust
  • St Helens & Knowsley Teaching Hospitals NHS Trust
  • Centre for Health Service Economics and Organisation
  • Cedar, Cardiff and Vale UHB
  • Lancashire Care NHS Foundation Trust
  • Nice
  • NHS Improving Quality
  • Beyond Compliance
  • Newcastle upon Tyne Hospitals NHS Foundation Trust
  • Birmingham Children’s Hospital
  • Met Office
  • Experian Marketing Services
  • Northern Lincolnshire and Goole Hospitals NHS Foundation Trust
  • NHS Trust Development Authority
  • Health Education East Midlands
  • The Royal Marsden NHS Foundation Trust
  • Kingston Hospital NHS Trust
  • Royal Borough of Greenwich
  • University Hospital of North Staffordshire
  • Children's Commissioner's Office
  • Organisations with projects that honoured opt outs:

  • Medicines and Healthcare Products Regulatory Agency (MHRA)
  • University of Oxford
  • University College London (UCL)
  • Public Health England (phe)
  • University of Cambridge
  • University Hospitals Birmingham NHS Foundation Trust
  • University of Birmingham
  • University of Bristol
  • University of York
  • Royal College of Physicians of London
  • South London and Maudsley NHS Foundation Trust
  • Royal College of Obstetricians and Gynaecologists (RCOG)
  • Queen Mary University of London
  • London School of Hygiene and Tropical Medicine
  • NHS Blood And Transplant (nhsbt)
  • NHS Wales Informatics Service (nwis)
  • Imperial College London
  • UK Biobank
  • The Royal College of Surgeons of England
  • The University of Manchester
  • University of Nottingham
  • Intensive Care National Audit & Research Centre (ICNARC)
  • Nuvia Ltd
  • Wolfson Institute of Preventive Medicine
  • University Of Aberdeen
  • Newcastle University
  • Care Quality Commission (CQC)
  • National Institute for Cardiovascular Outcomes Research
  • Ims Health Ltd
  • Royal College of Anaesthetists
  • Cardiff University
  • University of Leeds
  • Ministry Of Defence (mod)
  • Genomics England
  • West Hertfordshire Hospitals NHS Trust (WHHT)
  • North Bristol NHS Trust
  • University of Sheffield
  • Institute of Cancer Research
  • Gloucestershire Hospitals NHS Foundation Trust
  • Royal Free & University College Medical School
  • Chelsea And Westminster Hospital NHS Foundation Trust
  • Northgate Public Services (UK) Limited
  • London North West Healthcare NHS Trust
  • Ucl Institute Of Education (ioe)
  • Barts Health NHS Trust
  • London North West University Healthcare NHS Trust
  • The Medical School - Newcastle Upon Tyne
  • National Cjd Surveillance Unit
  • Health and Safety Executive
  • Sheffield Teaching Hospitals NHS Foundation Trust
  • University Hospital Southampton NHS Foundation Trust
  • Informatica Systems Ltd
  • Health & Safety Laboratory (hsl)
  • University of Glasgow
  • IQVIA Solutions UK Limited
  • Nottinghamshire Healthcare NHS Foundation Trust
  • University College London Hospitals NHS Foundation Trust
  • University of Dundee
  • Institute Of Child Health
  • Guy's And St Thomas' NHS Foundation Trust
  • Salford Royal NHS Foundation Trust
  • Cancer Research Uk
  • Royal Devon and Exeter NHS Foundation Trust
  • Health & Social Care Information Centre
  • Royal Liverpool University Hospital
  • Derbyshire Health NHS Foundation Trust
  • Gateshead Health NHS Foundation Trust
  • King's College Hospital NHS Foundation Trust
  • Saving Faces - The Facial Surgery Research Foundation
  • Leicestershire County Council
  • Picker Institute Europe
  • Institute Of Occupational Medicine (iom)
  • Cheshire East Council
  • Medical Research Council Clinical Trials Unit
  • Surrey County Council
  • London Borough of Barking and Dagenham
  • London Borough of Hounslow
  • London Borough of Bexley
  • Blackburn with Darwen Borough Council
  • University of Leicester
  • London Borough of Richmond Upon Thames Council
  • Tameside Metropolitan Borough Council
  • Worcestershire County Council
  • Nottingham City Council
  • Cause Action Ltd
  • London Borough of Lewisham Council
  • Essex County Council
  • London Borough of Islington
  • Herefordshire Council
  • Thurrock Council
  • Coventry City Council
  • Torbay Council
  • Calderdale Metropolitan Borough Council
  • London Borough of Southwark Council
  • London Borough of Sutton Council
  • Isle of Wight Council
  • London Borough of Redbridge Council
  • Southampton City Council
  • East Riding of Yorkshire Council
  • North Lincolnshire Council
  • Peterborough City Council
  • Trafford Metropolitan Borough Council
  • London Borough Of Bromley
  • St Helens Metropolitan Borough Council
  • Cheshire West and Chester Council
  • Nottinghamshire County Council
  • Portsmouth City Council
  • Barnsley Metropolitan Borough Council
  • Solihull Metropolitan Borough Council
  • Salford City Council
  • East Sussex County Council
  • Southend on Sea Borough Council
  • London Borough of Lambeth Council
  • Devon County Council
  • Stockport Metropolitan Borough Council
  • Rochdale Metropolitan Borough Council
  • Wigan Metropolitan Borough Council
  • London Borough of Greenwich
  • London Borough of Waltham Forest Council
  • Sheffield City Council
  • Hmrc
  • Suffolk County Council
  • Bury Metropolitan Borough Council
  • Cornwall Council
  • Blackpool Borough Council
  • Kirklees Metropolitan Council
  • Lincolnshire County Council
  • Brighton and Hove City Council
  • Luton Borough Council
  • Doncaster Council
  • Derbyshire County Council
  • Knowsley Metropolitan Borough Council
  • Liverpool City Council
  • City of Bradford Metropolitan District Council
  • London Borough of Ealing
  • Wiltshire Council
  • Wolverhampton City Council
  • Cumbria County Council
  • Plymouth City Council
  • Dudley Metropolitan Borough Council
  • Royal Borough of Kingston-Upon-Thames Council
  • North Yorkshire County Council
  • Bracknell Forest Borough Council
  • Newcastle Upon Tyne City Council
  • Somerset County Council
  • Medway Council
  • Leicester City Council
  • South Tyneside Metropolitan Borough Council
  • Bristol City Council
  • Leeds City Council
  • Wakefield Council
  • Buckinghamshire County Council
  • Norfolk County Council
  • Bath and North East Somerset Council
  • Warrington Borough Council (Unitary)
  • South Gloucestershire Council
  • London Borough of Havering
  • Wirral Metropolitan Borough Council
  • Manchester City Council
  • Sandwell Metropolitan Borough Council
  • York City Council
  • Oldham Metropolitan Borough Council
  • Hertfordshire County Council
  • Halton Borough Council (Unitary)
  • Cambridgeshire County Council
  • London Borough of Merton Council
  • Gloucestershire County Council
  • Northumberland County Council
  • Sefton Council
  • Northamptonshire County Council
  • Hampshire County Council
  • University of Liverpool
  • West Sussex County Council
  • Lancashire County Council
  • Kent County Council
  • London Borough of Barnet
  • Birmingham City Council
  • Warwickshire County Council
  • Staffordshire County Council
  • North East Lincolnshire Council
  • Sunderland City Council
  • University of Warwick
  • Kings College Medical School
  • Royal College Of Paediatrics & Child Health (rcpch)
  • Kings College Medical School
  • Dorset County Council
  • St George's, University of London
  • King's College London
  • Havering London Borough Council
  • National Centre For Social Research
  • Clinical Practice Research Datalink (CPRD)
  • Southampton General Hosptial
  • University of East Anglia
  • Dorset Council
  • The Nuffield Trust
  • Hackney Council
  • University Of Southampton
  • Cambridge University Hospitals NHS Foundation Trust
  • Derby Teaching Hospitals NHS Foundation Trust
  • Society of Endocrinology
  • Projects above are ordered by volumes of data they receive (longer projects or more data appear higher).

    CSU/CCGs

    These are grouped in the release register, but audited (and fail) independently

  • NHS Heywood, Middleton and Rochdale CCG
  • NHS East Lancashire CCG
  • NHS Leeds CCG
  • NHS North East Hampshire and Farnham CCG
  • NHS South Tyneside CCG
  • NHS Birmingham and Solihull CCG
  • NHS West Norfolk CCG
  • NHS Hardwick CCG
  • NHS Guildford and Waverley CCG
  • NHS Airedale, Wharfedale and Craven CCG
  • NHS South Warwickshire CCG
  • NHS East Surrey CCG
  • NHS North Durham CCG
  • NHS Coventry and Rugby CCG
  • NHS Berkshire West CCG
  • NHS Swindon CCG
  • NHS Liverpool CCG
  • NHS Barking and Dagenham CCG
  • NHS Crawley CCG
  • NHS Sunderland CCG
  • NHS Bexley CCG
  • NHS Erewash CCG
  • NHS Hambleton, Richmondshire and Whitby CCG
  • NHS Gloucestershire CCG
  • NHS Sandwell and West Birmingham CCG
  • NHS Sheffield CCG
  • NHS Lincolnshire East CCG
  • NHS Telford and Wrekin CCG
  • NHS Bolton CCG
  • NHS Darlington CCG
  • NHS Wakefield CCG
  • NHS Buckinghamshire CCG
  • NHS Dudley CCG
  • NHS Shropshire CCG
  • NHS Manchester CCG
  • NHS Bristol, North Somerset and South Gloucestershire CCG
  • NHS Bedfordshire CCG
  • NHS Greater Preston CCG
  • NHS Oxfordshire CCG
  • NHS Ashford CCG
  • NHS North Derbyshire CCG
  • NHS Fylde and Wyre CCG
  • NHS East Berkshire CCG
  • NHS Wolverhampton CCG
  • NHS Milton Keynes CCG
  • NHS Calderdale CCG
  • NHS Dartford, Gravesham and Swanley CCG
  • NHS Canterbury and Coastal CCG
  • NHS Corby CCG
  • NHS Barnet CCG
  • NHS Eastern Cheshire CCG
  • NHS South Kent Coast CCG
  • NHS Southport and Formby CCG
  • NHS Thanet CCG
  • NHS Luton CCG
  • NHS Southern Derbyshire CCG
  • NHS Surrey Heath CCG
  • NHS Bury CCG
  • NHS Walsall CCG
  • NHS Croydon CCG
  • NHS Trafford CCG
  • NHS Doncaster CCG
  • NHS East Riding of Yorkshire CCG
  • NHS Tameside and Glossop CCG
  • NHS Kernow CCG
  • NHS Stockport CCG
  • NHS Brent CCG
  • NHS East and North Hertfordshire CCG
  • NHS Islington CCG
  • NHS South Tees CCG
  • NHS Rotherham CCG
  • NHS Somerset CCG
  • NHS East Leicestershire and Rutland CCG
  • NHS Swale CCG
  • NHS North East Lincolnshire CCG
  • NHS Northumberland CCG
  • NHS North Tyneside CCG
  • NHS Durham Dales, Easington and Sedgefield CCG
  • NHS Salford CCG
  • NHS West Lancashire CCG
  • NHS Enfield CCG
  • NHS Chorley and South Ribble CCG
  • NHS Fareham and Gosport CCG
  • NHS Blackburn with Darwen CCG
  • NHS Blackpool CCG
  • NHS West Kent CCG
  • NHS Newcastle Gateshead CCG
  • NHS South Norfolk CCG
  • NHS Brighton and Hove CCG
  • NHS Hull CCG
  • NHS Bradford City CCG
  • NHS Bradford Districts CCG
  • NHS Dorset CCG
  • NHS Bath and North East Somerset CCG
  • NHS Hartlepool and Stockton-on-Tees CCG
  • NHS North Norfolk CCG
  • NHS Vale of York CCG
  • NHS Oldham CCG
  • NHS North Lincolnshire CCG
  • NHS Medway CCG
  • NHS Ipswich and East Suffolk CCG
  • NHS Norwich CCG
  • NHS Southwark CCG
  • NHS Greenwich CCG
  • NHS St Helens Ccg
  • NHS Warwickshire North CCG
  • NHS Barnsley CCG
  • NHS Richmond CCG
  • NHS North Cumbria CCG
  • NHS Basildon and Brentwood CCG
  • NHS Wirral CCG
  • NHS Waltham Forest CCG
  • NHS Kingston CCG
  • NHS Warrington CCG
  • NHS Scarborough and Ryedale CCG
  • NHS Havering CCG
  • NHS Lincolnshire West CCG
  • NHS West Cheshire CCG
  • NHS Knowsley CCG
  • NHS South West Lincolnshire CCG
  • NHS Surrey Downs CCG
  • NHS Lewisham CCG
  • NHS South Sefton CCG
  • NHS Great Yarmouth and Waveney CCG
  • NHS Herts Valleys CCG
  • NHS Wiltshire CCG
  • NHS Bromley CCG
  • NHS Morecambe Bay CCG
  • NHS Bassetlaw CCG
  • NHS Haringey CCG
  • NHS South Lincolnshire CCG
  • NHS Halton CCG
  • NHS Harrow CCG
  • NHS Greater Huddersfield CCG
  • NHS North East Essex CCG
  • NHS Rushcliffe CCG
  • NHS North Kirklees CCG
  • NHS West Essex CCG
  • NHS Leicester City CCG
  • NHS Harrogate and Rural District CCG
  • NHS Mansfield and Ashfield CCG
  • NHS Newark and Sherwood CCG
  • NHS West Hampshire CCG
  • NHS Portsmouth CCG
  • NHS Stafford and Surrounds CCG
  • NHS East Staffordshire CCG
  • NHS Herefordshire CCG
  • NHS North Hampshire CCG
  • NHS South Eastern Hampshire CCG
  • NHS Stoke On Trent Ccg
  • NHS Redbridge CCG
  • NHS Nene CCG
  • NHS South Worcestershire CCG
  • NHS Lambeth CCG
  • NHS Redditch and Bromsgrove CCG
  • NHS Wigan Borough CCG
  • NHS Cannock Chase CCG
  • NHS Thurrock CCG
  • NHS Northern, Eastern and Western Devon CCG
  • NHS North Staffordshire CCG
  • NHS West Leicestershire CCG
  • NHS West Suffolk CCG
  • NHS Wyre Forest CCG
  • NHS Nottingham West CCG
  • NHS Nottingham North and East CCG
  • NHS Nottingham City CCG
  • NHS Cambridgeshire and Peterborough CCG
  • NHS Vale Royal CCG
  • NHS Horsham and Mid Sussex CCG
  • NHS Southend CCG
  • NHS North of England Commissioning Support Unit
  • NHS South East Staffordshire and Seisdon Peninsula CCG
  • NHS Eastbourne, Hailsham & Seaford Ccg
  • NHS Mid Essex CCG
  • NHS Tower Hamlets CCG
  • NHS North and East London Commissioning Support Unit
  • NHS West London CCG
  • NHS Hammersmith and Fulham CCG
  • NHS Ealing CCG
  • NHS Hounslow CCG
  • NHS Hillingdon CCG
  • NHS Wandsworth CCG
  • NHS Central London (Westminster) CCG
  • NHS Merton CCG
  • NHS Isle of Wight CCG
  • NHS Leeds South And East Ccg
  • NHS Hastings and Rother CCG
  • NHS High Weald Lewes Havens CCG
  • NHS Sutton CCG
  • NHS South Cheshire CCG
  • NHS South Devon and Torbay CCG
  • NHS North West Surrey Ccg
  • NHS Slough Ccg
  • NHS Chiltern Ccg
  • NHS Newham CCG
  • NHS Camden CCG
  • NHS Southampton Ccg
  • NHS South Reading Ccg
  • NHS Windsor Ascot And Maidenhead Ccg
  • NHS Herts Valley Ccg
  • NHS Coastal West Sussex CCG
  • NHS Leeds West Ccg
  • NHS Leeds North Ccg
  • NHS Bracknell And Ascot Ccg
  • NHS Castlepoint And Rochford Ccg
  • NHS Cumbria Ccg
  • NHS Wokingham Ccg
  • NHS North And West Reading Ccg
  • NHS Central Manchester Ccg
  • NHS Midlands And Lancashire Commissioning Support Unit
  • NHS Central Midlands Commissioning Support Unit
  • NHS Bristol Ccg
  • NHS Northern Eastern Western Devon Ccg
  • NHS Aylesbury Ccg
  • NHS Newbury And District Ccg
  • NHS City & Hackney Ccg
  • NHS Cambridge And Peterborough Ccg
  • NHS Solihull Ccg
  • NHS Castle Point and Rochford CCG
  • NHS South Gloucestershire Ccg
  • NHS North Somerset Ccg
  • NHS South Manchester Ccg
  • NHS North Manchester Ccg
  • NHS Birmingham South And Central Ccg
  • NHS Durham Dales, Easington & Sedgefield Ccg
  • NHS City and Hackney CCG
  • NHS Southampton City CCG
  • NHS Lancashire North Ccg
  • NHS South East Staffs And Seisdon Peninsular Ccg
  • NHS South, Central and West Commissioning Support Unit
  • NHS Birmingham Cross City Ccg
  • NHS Devon CCG
  • NHS Aylesbury Vale Ccg
  • NHS Birmingham Crosscity Ccg
  • NHS Eastbourne, Hailsham and Seaford CCG
  • Csus, Ccgs
  • NHS Bracknell And Ascot Ccg
  • NHS Newbury And District Ccg
  • NHS Windsor, Ascot And Maidenhead Ccg
  • NHS Fylde & Wyre Ccg
  • NHS South Commissioning Support Unit
  • Central Southern Commissioning Support Unit