NHS Digital Data Release Register - reformatted
This is a readable version of NHS Digital's Data Release Registers since April 2016 - the "complete" list of where NHS Digital sends data on hospital patients after being paid a processing fee, and whether that release respected opt outs or not. To make that choice for you and your family, medConfidential has details on how.
A small number of other data uses in COVID-19 is available from NHS Digital, in addition to an incomplete spreadsheet from NHS England withholding most data uses.
This page is updated roughly monthly when NHS Digital publish more data. This page doesn't currently include anything from the cancer registry, whose release register is incomplete and wrong (e.g. when NDRS says 'You can find out more about these research projects here' many organisations simply weren't listed).
Did they respect the opt out (or sell your data anyway)?
For the last month we know about (2022/07), NHSD chose to respect optouts in 45% of 1146 data releases.
Was the National Data Opt Out respected:
- 633: No - "Does not include the flow of confidential data"
- 243: Consent (Reasonable Expectation)
- 239: Yes
- 13: Statutory exemption to flow confidential data without consent
- 12: Mixture of confidential data flow(s) with support under section 251 NHS Act 2006 and "non-confidential" data flow(s)
- 6: Section 251 NHS Act 2006
Some organisations that breached the rules:
- Imperial College multiple breaches, remains high risk as dangers persist.
- University College London (UCL) [Opt outs honoured: No, SMLS reported a DPA serious incident; breached contract — audit report]
- Methods Analytics Ltd [Opt outs honoured: No, breached contract — audit report]
- Harvey Walsh Ltd [Opt outs honoured: No, unreported DPA breaches; breached contract — audit report]
- Wakefield Council [Opt outs honoured: No, breached contract (access/storage breaches) — audit report]
- London Borough Of Enfield [Opt outs honoured: No, unreported DPA serious incident — audit report]
- Health IQ Ltd [Opt outs honoured: No, breached contract — audit report]
- University of Nottingham [Opt outs honoured: partially, breached contract (and anonymisation code) — audit report]
- Device Access UK Ltd [Opt outs honoured: No, breached contract with "high risk" — audit report]
- Gateshead Metropolitan Borough Council [Opt outs honoured: No, breached contract (retained 'deleted' data) — audit report]
- Rod Gibson Associates Ltd [Opt outs honoured: No, breached contract (used DropBox) — audit report]
Organisations with projects that fully ignored opt outs since 2018:
244 organisations since 2018.
- Monitor
- Methods Analytics Ltd
- NHS England (quarry House)
- National Audit Office
- The Health Foundation
- Harvey Walsh Ltd
- Wilmington Healthcare
- Department Of Health And Social Care
- Carnall Farrar Limited
- Chks Limited
- Health Data Research Uk
- Optum Health Solutions Uk Limited
- Health Iq Ltd
- London Borough Of Enfield
- Derby City Council
- I5 Health
- Kpmg Llp
- London Borough of Newham Council
- London Borough Of Hackney
- Durham County Council
- Oxfordshire County Council
- Ernst And Young Llp
- Lightfoot Solutions Uk Ltd
- Walsall Metropolitan Borough Council
- Device Access Uk Ltd
- Compufile Systems Limited
- Dr. Foster Limited
- National Institute For Health And Care Excellence (nice)
- London Borough of Tower Hamlets Council
- Westminster City Council
- Gateshead Metropolitan Borough Council
- NHS National Services Scotland
- Rand Europe
- NHS Improvement
- The Newcastle Upon Tyne Hospitals NHS Foundation Trust
- Oliver Wyman
- Medeanalytics International Limited
- Regional Drug & Therapeutic Centre
- University Hospitals Of Derby And Burton NHS Foundation Trust
- I5 Health Limited
- Kingston Hospital NHS Foundation Trust
- Cumbria, Northumberland, Tyne And Wear NHS Foundation Trust
- London School Of Economics And Political Science (lse)
- Northumberland, Tyne And Wear NHS Foundation Trust
- Southend-on-sea Borough Council (unitary)
- Hartlepool Borough Council
- Hull City Council
- Birmingham Women's And Children's NHS Foundation Trust
- Meditrends Ltd
- Redcar And Cleveland Borough Council
- Gateshead Council
- Telstra Health Uk Limited
- Crab Clinical Informatics
- Harrow Council
- Ignite Data Limited
- Cegedim Rx Ltd
- Telford and Wrekin Council (Unitary)
- NHS Central Register Scotland
- Health Innovation Network - South London
- Bradford Metropolitan District Council
- Calderdale Council
- London Borough Of Tower Hamlets
- Astrazeneca Uk Limited
- Private Healthcare Information Network (phin)
- Swansea University
- Royal Liverpool And Broadgreen University Hospitals NHS Trust
- The King's Fund
- Nottingham City Council (unitary)
- Civil Eyes Research Ltd
- London Borough Of Hillingdon
- Telford And Wrekin Council
- Nhis
- Bangor University
- Rm Partners
- London Borough Of Croydon
- La-ser Europe Ltd
- City Of Westminster
- University Of Hull
- Oxford University Hospitals NHS Trust
- Novavax, Inc.
- NHS Birmingham and Solihull Clinical Commissioning Group
- Bolton Metropolitan Borough Council
- The Royal Marsden NHS Foundation Trust
- London Borough Of Newham Council
- Royal Brompton And Harefield NHS Trust
- Brighton & Hove City Council
- Barts And The London School Of Medicine And Dentistry
- Leeds Teaching Hospitals NHS Trust
- Kent County Council
- North Tyneside Council
- Non-specialist Acute Trusts In England
- REGIONAL DRUG & THERAPEUTIC CENTRE
- London Borough Of Newham
- London Borough Of Harrow
- 3m United Kingdom Plc
- London Borough Of Wandsworth
- Redcar & Cleveland Council (unitary)
- Cambridge Centre For Health Services Research
- Islington Council
- University Of Exeter
- NHS England Direct Commissioning
- NHS England
- Grail Bio Uk Ltd
- Wiltshire Council
- British Society Of Gastroenterology
- Oliver Wyman Ltd
- London Borough Of Haringey
- University Of Essex
- NHS England
- Mckinsey & Company
- Plymouth City Council
- Rand Europe Community Interest Company
- Capita
- Department For Transport
- Uk Haemophilia Centre Doctors' Organisation
- Northamptonshire County Council
- Iqvia Technology Services Ltd.
- Market And Opinion Research International Limited
- University Hospitals Coventry And Warwickshire NHS Trust
- The Dudley Group NHS Foundation Trust
- Imperial College London Business School
- Western General Hospital
- University Of Oxford, Department Of Paediatrics
- Competition & Markets Authority
- Pharmerit International
- Renal Registry
- Royal National Orthopaedic Hospital NHS Trust
- St James University Hospital NHS Trust
- Gstt @ Royal Brompton Hospital
- University Of Hertfordshire
- Stoke-on-trent City Council
- Keele University
- Cheshire East Borough Council
- NHS England North (cumbria And North East)
- Stoke on Trent City Council
- Neil Wilson Associates Llp
- NHS England Midlands And East
- Kent And Medway Cancer Alliance
- Powys Teaching Lhb
- North Central London Cancer Alliance
- Thames Valley Cancer Alliance
- TELFORD & WREKIN COUNCIL
- Public Health Scotland
- ISLE OF MAN DEPARTMENT OF HEALTH & SOCIAL CARE
- GLAXOSMITHKLINE RESEARCH & DEVELOPMENT LIMITED
- CSL-UK (CompuFile System Limited)
- University Of Westminster
- South East London Cancer Alliance
- Redcar & Cleveland Borough Council
- Isle of Man Department of Health & Social Care
- Buckinghamshire Healthcare NHS Trust
- Poole Hospital NHS Foundation Trust
- Norfolk And Norwich University Hospitals NHS Foundation Trust
- Plymouth University
- West Midlands Cancer Alliance
- West Yorkshire And Harrogate Cancer Alliance
- Northern Cancer Alliance
- Met Office
- Greater Manchester Cancer Alliance
- Cheshire And Merseyside Cancer Alliance
- Vanguard - Moorfields Eye Hospital NHS Foundation Trust
- Cardiff University School Of Medicine
- University Of Bath
- Pathway Communications Ltd
- University Hospital Of South Manchester NHS Foundation Trust
- Local Authorities: Data Has Been Made Available To The Public Health Sections Of 91 Councils
- Bradford Teaching Hospitals NHS Foundation Trust
- Children's Commissioner's Office
- Wessex Cancer Alliance
- Wilmington Healthcare
- East Of England - North Cancer Alliance
- Breast Test Wales
- Rod Gibson Associates Ltd
- Department of Health (DH)
- South Yorkshire & Bassetlaw Cancer Alliance
- 2020 Delivery
- Lancashire & South Cumbria Cancer Alliance
- University Of London (uol)
- Beacon Consulting
- Hull And York Medical School
- NHS England (Skipton House)
- Royal Papworth Hospital NHS Foundation Trust
- University Hospitals Of North Midlands NHS Trust
- Nuffield Department Of Primary Health Sciences
- Trafford Council
- Sandwell And West Birmingham Hospitals NHS Trust
- SOUTH YORKSHIRE & BASSETLAW CANCER ALLIANCE
- Royal Brompton Hospital
- FTI Consulting
- Competition and Markets Authority
- Stockton-on-tees Borough Council
- NHS England (temporary National Repository)
- Peninsula Cancer Alliance
- University Of Northumbria At Newcastle
- Wellcome Sanger Institute
- Somerset, Wiltshire, Avon And Gloucestershire Cancer Alliance
- University Of Kent
- University Hospitals Dorset NHS Foundation Trust
- Central Manchester University Hospitals NHS Foundation Trust
- Natcen Social Research
- LANCASHIRE & SOUTH CUMBRIA CANCER ALLIANCE
- NHS Trust Development Authority (ntda)
- Hull And East Yorkshire Hospitals NHS Trust
- University Of Ulster
- The Nuffield Department Of Surgical Sciences - Nds
- ROYAL COLLEGE OF PAEDIATRICS & CHILD HEALTH (RCPCH)
- Lambeth London Borough Council
- East Midlands Cancer Alliance
- Royal Derby Hospitals
- The Christie NHS Foundation Trust
- Surrey And Sussex Cancer Alliance
- Janssen-cilag Limited
- University Of Newcastle Upon Tyne
- Ipsos Mori
- LANCASHIRE & SOUTH CUMBRIA NHS FOUNDATION TRUST
- Royal College Of Surgeons In Ireland
- City University Of London
- Sanofi Pasteur
- MEDICAGO R&D INCORPORATED
- 2020 Delivery Ltd
- Humber, Coast And Vale Cancer Alliance
- Dr. Foster
- Birmingham Children's Hospital NHS Foundation Trust
- St Helens & Knowsley Teaching Hospitals NHS Trust
- Prescqipp Cic
- Northern Lincolnshire and Goole Hospitals NHS Foundation Trust
- Modernatx, Inc
- Our Future Health
- Northern Care Alliance NHS Foundation Trust
- Health Education East Midlands
- University Hospital of North Staffordshire
- Nice
- Northern Ireland Clinical Trials Unit
- Beyond Compliance
- NHS Improving Quality
- Cedar, Cardiff and Vale UHB
- Centre for Health Service Economics and Organisation
- Experian Marketing Services
- NHS Trust Development Authority
- Kingston Hospital NHS Trust
- Birmingham Children’s Hospital
- Home Office
- Newcastle upon Tyne Hospitals NHS Foundation Trust
- Lancashire Care NHS Foundation Trust
Organisations with projects that (partially or fully) honoured opt outs:
280 organisations (56 possibly dangerously if outside the TRE).
- University Of Oxford 🚩
- Medicines And Healthcare Products Regulatory Agency (mhra) 🚩
- Public Health England (phe) 🚩
- Genomics England 🚩
- University College London (ucl) 🚩
- University Of Cambridge 🚩
- University Of Bristol 🚩
- Care Quality Commission (cqc)
- Royal College Of Obstetricians And Gynaecologists (rcog) 🚩
- University Hospitals Birmingham NHS Foundation Trust 🚩
- Uk Biobank
- University Of Birmingham 🚩
- Queen Mary University Of London 🚩
- Imperial College London 🚩
- University Of York 🚩
- South London And Maudsley NHS Foundation Trust 🚩
- Health And Safety Executive 🚩
- Institute Of Cancer Research 🚩
- The University Of Manchester 🚩
- King's College London 🚩
- NHS Wales Informatics Service (nwis)
- London School Of Hygiene And Tropical Medicine 🚩
- University Of Leeds 🚩
- University Of Sheffield 🚩
- North Bristol NHS Trust
- The Brain Tumour Charity
- Royal Liverpool University Hospital
- Royal College Of Physicians Of London 🚩
- Royal College Of Anaesthetists 🚩
- Health & Social Care Information Centre
- University Of Nottingham 🚩
- University Of Aberdeen 🚩
- The Royal College Of Surgeons Of England
- Newcastle University 🚩
- NHS Blood And Transplant (nhsbt) 🚩
- Cambridge University Hospitals NHS Foundation Trust
- National Institute For Cardiovascular Outcomes Research 🚩
- St George's, University Of London
- University Of Dundee
- Nottingham University Hospitals NHS Trust
- Manchester University NHS Foundation Trust 🚩
- Nuvia Ltd
- Ministry Of Defence (mod) 🚩
- Cardiff University 🚩
- Northgate Public Services (uk) Limited 🚩
- National Institute For Health Research (nihr) Bioresource
- Cambridgeshire And Peterborough NHS Foundation Trust
- Lincolnshire County Council
- Suffolk County Council
- Peterborough City Council
- Barts Health NHS Trust 🚩
- Warwickshire County Council
- National Cjd Surveillance Unit
- South Gloucestershire Council
- Surrey County Council
- Nottinghamshire County Council
- West Sussex County Council
- London Borough Of Islington
- East Sussex County Council
- Cheshire West And Chester Council
- London North West University Healthcare NHS Trust 🚩
- Leicestershire County Council
- Iqvia Ltd 🚩
- Norfolk County Council
- North Lincolnshire Council
- Cambridgeshire County Council
- Brighton And Hove City Council
- Birmingham City Council
- Hampshire County Council
- Tameside Metropolitan Borough Council
- University Of Southampton
- Bury Metropolitan Borough Council
- Plymouth City Council
- Sandwell Metropolitan Borough Council
- University Of Surrey
- Wigan Metropolitan Borough Council
- Devon County Council
- Cheshire East Council
- London Borough Of Havering
- Blackburn With Darwen Borough Council
- Cornwall Council
- Southampton City Council
- Derbyshire County Council
- London Borough Of Barking And Dagenham
- Solihull Metropolitan Borough Council
- HEALTH & SOCIAL CARE INFORMATION CENTRE
- Rochdale Metropolitan Borough Council
- Essex County Council
- Liverpool City Council
- Trafford Metropolitan Borough Council
- Northumberland County Council
- Staffordshire County Council
- East Riding Of Yorkshire Council
- Sunderland City Council
- Torbay Council
- Hertfordshire County Council
- Gloucestershire County Council
- Salford City Council
- Kent County Council
- Stockport Metropolitan Borough Council
- Coventry City Council
- Portsmouth City Council
- Bath And North East Somerset Council
- Blackpool Borough Council
- Calderdale Metropolitan Borough Council
- North East Lincolnshire Council
- Thurrock Council
- Medway Council
- Oldham Metropolitan Borough Council
- Barnsley Metropolitan Borough Council
- Leeds City Council
- University Of Warwick 🚩
- Dudley Metropolitan Borough Council
- Somerset County Council
- Leicester City Council
- Wiltshire Council
- London Borough Of Bromley
- University Hospital Southampton NHS Foundation Trust 🚩
- Isle Of Wight Council
- Worcestershire County Council
- University Of Glasgow
- Intensive Care National Audit & Research Centre (ICNARC)
- West Hertfordshire Hospitals NHS Trust (whht) 🚩
- Dorset Council
- Northwest Ehealth Limited
- Knowsley Metropolitan Borough Council
- Nottingham City Council
- North Yorkshire County Council
- London Borough Of Hounslow
- Lancashire County Council
- Cumbria County Council
- London Borough Of Ealing
- Bristol City Council
- Sheffield City Council
- City Of Bradford Metropolitan District Council
- Wolfson Institute Of Preventive Medicine 🚩
- Herefordshire Council
- Royal Borough Of Greenwich
- Manchester City Council
- Buckinghamshire Council
- University Hospitals Bristol And Weston NHS Foundation Trust
- Ims Health Ltd 🚩
- King's College Hospital NHS Foundation Trust
- Sefton Council
- Kirklees Council
- Moorfields Eye Hospital NHS Foundation Trust
- Wirral Metropolitan Borough Council
- London Borough of Redbridge Council
- Derbyshire Healthcare NHS Foundation Trust
- London Borough of Sutton Council
- Wakefield Council
- Gloucestershire Hospitals NHS Foundation Trust 🚩
- Newcastle Upon Tyne City Council
- Bracknell Forest Borough Council
- London Borough Of Barnet
- Doncaster Council
- South Tyneside Metropolitan Borough Council
- London Borough of Waltham Forest Council
- London Borough of Southwark Council
- University Of Liverpool
- University Of Edinburgh
- Warrington Borough Council
- St Helens Metropolitan Borough Council
- Halton Borough Council
- Liverpool Heart And Chest Hospital NHS Foundation Trust
- Saving Faces - The Facial Surgery Research Foundation
- London Borough Of Richmond Upon Thames Council
- York City Council
- Northamptonshire County Council
- London Borough Of Bexley
- London Borough Of Merton Council
- Southend on Sea Borough Council
- Wolverhampton City Council
- London Borough of Lewisham Council
- Royal Borough Of Kingston-upon-thames Council
- North Northamptonshire Council
- St. Georges Hospital Medical School
- Institute For Fiscal Studies
- Hmrc
- McKinsey & Company, Inc. United Kingdom 🚩
- The Medical School - Newcastle Upon Tyne 🚩
- The Royal Wolverhampton NHS Trust
- Addenbrooke's Hospital 🚩
- National Centre For Social Research
- Royal Free & University College Medical School
- The Clatterbridge Cancer Centre NHS Foundation Trust 🚩
- Institute Of Child Health
- Chelsea And Westminster Hospital NHS Foundation Trust
- London Borough Of Sutton
- London Borough Of Southwark
- London Borough Of Merton
- Buckinghamshire County Council
- London Borough Of Lewisham
- Society Of Endocrinology
- Royal Devon And Exeter NHS Foundation Trust
- Halton Borough Council (Unitary)
- Royal Free London NHS Foundation Trust 🚩
- Warrington Borough Council (Unitary)
- Ucl Institute Of Education (ioe) 🚩
- St Helens Council
- Wakefield Metropolitan District Council
- London Borough Of Richmond Upon Thames
- Wirral Borough Council
- Newcastle City Council
- Bracknell Forest Council
- London Borough Of Waltham Forest
- Sefton Metropolitan Borough Council
- Iqvia Solutions Uk Limited 🚩
- London Borough Of Redbridge
- Southend-on-sea Borough Council
- City Of York Council
- South Tyneside Council
- Royal Borough Of Kingston Upon Thames
- Oxford University Hospitals NHS Foundation Trust
- Doncaster Metropolitan Borough Council
- City Of Wolverhampton Council
- University Hospitals Bristol NHS Foundation Trust
- University College London Hospitals NHS Foundation Trust
- Northumbria Healthcare NHS Foundation Trust
- London North West Healthcare NHS Trust
- London Borough of Greenwich
- INTENSIVE CARE NATIONAL AUDIT & RESEARCH CENTRE (ICNARC)
- London Borough of Lambeth Council
- London Borough of Barnet Council
- London Borough of Bexley Council
- Kirklees Metropolitan Council
- National Institute For Health Research
- Nottinghamshire Healthcare NHS Foundation Trust
- Sheffield Teaching Hospitals NHS Foundation Trust 🚩
- Uk Health Security Agency
- Informatica Systems Ltd
- University Of Leicester
- Salford Royal NHS Foundation Trust 🚩
- Royal Devon University Healthcare NHS Foundation Trust
- Health & Safety Laboratory (hsl)
- Bradford City Metropolitan District Council
- The Institute for Fiscal Studies (IFS)
- Nec Software Solutions Uk Limited
- MCKINSEY & COMPANY, INC. UNITED KINGDOM
- Royal College Of Psychiatrists
- London Borough Of Lambeth
- Guy's And St Thomas' NHS Foundation Trust 🚩
- West Hertfordshire Hospitals NHS Trust
- Cancer Research Uk
- British Thoracic Society
- London Ambulance Service NHS Trust
- Royal Borough of Kingston-Upon-Thames
- Luton Borough Council
- Derbyshire Health NHS Foundation Trust
- Astrazeneca Ab
- The Nuffield Trust For Research And Policy Studies In Health Services
- Saving Faces
- Gateshead Health NHS Foundation Trust
- Valneva Austria Gmbh
- Picker Institute Europe 🚩
- West Hertfordshire Teaching Hospitals NHS Trust
- Institute Of Occupational Medicine (iom) 🚩
- Medical Research Council Clinical Trials Unit
- Cause Action Ltd
- Liverpool University Hospitals NHS Foundation Trust
- Kingston University London
- Royal Surrey County Hospital NHS Foundation Trust
- Erasmus University Rotterdam
- Great Ormond Street Hospital For Children NHS Foundation Trust
- St George's Hospital Medical School
- Dorset County Council
- Kings College Medical School
- Glasgow Caledonian University
- Kings College Medical School
- Office For National Statistics
- Clinical Practice Research Datalink (cprd)
- Royal College Of Paediatrics & Child Health (rcpch)
- University Of East Anglia
- Royal Surrey NHS Foundation Trust
- Hackney Council
- Office For National Statistics (ons) 🚩
- Derby Teaching Hospitals NHS Foundation Trust 🚩
- Havering London Borough Council
- The Nuffield Trust 🚩
- Southampton General Hosptial
Projects above are ordered by volumes of data they receive (longer projects or more data appear higher).
CSU/CCGs
These are grouped in the release register, but audited (and fail) independently