NHS Digital Data Release Register - reformatted

Society Of Endocrinology

Project 1 — DARS-NIC-147893-ZFLWG

Opt outs honoured: N

Sensitive: Sensitive

When: 2016/04 (or before) — 2017/05.

Repeats: Ongoing

Legal basis: Informed Patient consent to permit the receipt, processing and release of data by the HSCIC

Categories: Identifiable

Datasets:

  • MRIS - Members and Postings Report
  • MRIS - Cause of Death Report
  • MRIS - Cohort Event Notification Report

Objectives:

Acromegaly is associated with increased morbidity and mortality, due largely to cardiovascular, cerebrovascular and probably malignant disease. The incidence of acromegaly is reported to be between 4-6 new cases per million per year with a prevalence of approximately 40-60 per million. This equates in the UK to around 2,500 patients with acromegaly. Due to its comparative rarity no one centre can provide sufficient numbers of patients to enable analysis with sufficient statistical power. Therefore the UK Acromegaly register was established in 1997.


Project 2 — DARS-NIC-148364-RHMHS

Opt outs honoured: N

Sensitive: Sensitive

When: 2018/03 — 2018/05.

Repeats: Ongoing

Legal basis: Informed Patient consent to permit the receipt, processing and release of data by the HSCIC

Categories: Identifiable

Datasets:

  • MRIS - Members and Postings Report

Objectives:

The data supplied by the NHS IC to Royal Hallamshire Hospital will be used only for the approved Medical Research Project identified above.