NHS Digital Data Release Register - reformatted

Kings College Medical School

Project 1 — DARS-NIC-148120-0Q51J

Opt outs honoured: Y

Sensitive: Sensitive, and Non Sensitive

When: 2016/04 (or before) — 2017/02.

Repeats: Ongoing

Legal basis: Section 251 approval is in place for the flow of identifiable data

Categories: Identifiable

Datasets:

  • MRIS - Cause of Death Report
  • MRIS - Cohort Event Notification Report
  • MRIS - Scottish NHS / Registration
  • MRIS - Flagging Current Status Report

Benefits:

To be completed by applicant

Outputs:

To be completed by applicant

Processing:

To be completed by applicant

Objectives:

To determine overall outcome in terms of mortality and early entry into care of all babies and children (up to 5 years of age) identified with sickle cell disease (HbSS, HbSC, HbS, beta thalassaemia, Hb S/D Punjab, HbS/OArab) and overall access to timely informed choice in preceding screening history for parents.